Lucy

My Progress

I'm moving 120 kms this May to leave MS behind

My Progress

103 KMS

My target

120 KMS

Support my challenge to leave MS behind!

A little story for you!

Wednesday 23rd April 2025 - I woke up, normal day ahead and I was getting ready for work but noticed a tingling, almost light pins and needles, feeling in both my feet and lower legs that wouldn’t go away. Over the course of five days, it gradually became worse as basic daily functions suddenly became a challenge - my navel area to mid-thigh was around 90-95% numb, and the further down it went, the more numb it became – 100% loss of feeling in both feet and toes.

I was eventually given an MRI scan on Monday 28th April - the result: I have multiple scarring/lesions on both my brain and spinal cord. The diagnosis was relapsing-remitting Multiple Sclerosis (RRMS). 

I knew very little about the condition prior to my diagnosis. It’s been a learning curve for myself and my family, to understand, to manage, and to find my new limitations.

Since my diagnosis, I have had to overcome so many struggles - physically, emotionally and mentally - and all are just as hard as each other. The hardest part is that they don't work together. They argue all the time... My body says stop, my mind says push. My mind says rest, my body won't switch off. It's a constant back and forth that drains my energy so quickly, it’s like my power cord is pulled. The crash can happen suddenly and anywhere.

Common symptoms of MS that I experience frequently since diagnosis: aches, pain, fatigue, muscle spasms, fuzzy feelings like your nerves are vibrating, heavy legs, cognitive issues, frustration, depression, anxiety, fear - all of these can, and do, show up at the same time. MS is very much an invisible condition - while I’m sure I look OK on the outside, on the inside it’s a very different picture.

But I’m doing what I can, while I still can. A year on, to mark the occasion, I am taking part in The May 50K event. It’s a minimum of 50km but I am challenging myself to walk 100km throughout the month of May. If I hit that, I will up the target….but we’ll see if it’s the mind or body that wins that battle!

There are 150,000+ people in the UK living with MS. It’s the most common disabling neurological condition in young adults, usually diagnosed in the 30s or 40s - and women are 2.5 times more likely to be diagnosed than men. While I am fortunate to still have full mobility and access to disease modifying therapies (DMTs), some people are not as lucky. Therefore, if you can donate—big or small—you’ll be supporting the MS Society UK & the MS International Federation in funding life changing research, better treatments, and hopefully one day a cure 🎗️🧡

If you’d like to learn more about MS, visit the MS Society UK website (www.mssociety.org.uk) which offers comprehensive information on the different types of MS, treatment options that can help reduce relapses and slow progression, common symptoms people experience, and ways to support the MS community. 

Will I complete the 100km? Who knows! But I’ll give it everything—for myself, and for those living with MS. It's silent, it's invisible, and it's unpredictable.

And if you have made it to the end of this, thank you very much for taking the time to read all about ‘Me and My MS’ 🧡 

Lucy x

My Updates

Day 21 - with 10 days to go!

Lengthy walk to and from Slimming World, 7km added to the new 120km target! Happy stepping 🧡

Day 20

Pre-diagnosis, I took for granted the ability to push on through when I was feeling a little tired.

Post-diagnosis, that ‘little tired’ is complete exhaustion. 

Same activities - two very different stages of my life. So day 20 was just a day to and from the office with heavy legs, aching feet, exhaustion, emotional tears, frustration, balance issues, and a day of not focusing on the challenge. Just to function for a normal day was hard enough. We go again tomorrow or Friday. 

Within reaching distance of the 100km, so I decided to up the target to 120km. 
New goal 💪🏼

Day 19

5km walk at lunch, walks to and from train stations - that’s a nice little 8km day!

Day 18

Bouncing for another 4km!

Day 16 - FA Cup Final Day

Spent over four hours running around after 22 children at the FA Cup Final. With walks to and from stations and the day on my feet, we have 7.5km to add to the collection of kms.

Day 14

It’s a Thursday night ((Bounce)) Blast class for 45mins to earn me another 4km 🩷🩵

Day 13

A short lunchtime walk before the heavens opened ☔️

Day 12

A leisurely stroll at lunch around King Edward VII Park, Wembley.

Day 11

We rest 😴

Day 10 - National League Play Off Final

No set walks for me today while I enjoy hospitality at Wembley!

Day 9 and we hike!!

A solo walk up and around the Lullingstone Circular in Kent. Took on the views from high up on the hills and through Shoreham Village. 11.41km towards my total 🌟

Day 8 and the Weekend Arrives!

A lovely evening stroll through Lesnes Abbey with a friend and her dog, Nala. 5km to kick off the weekend.

Day 7

Slower day today, finding time to rest and recover. But still chose to leave the car at home and walk to and from Slimming World in the local village. With a 15 minute indoor ‘body magic’ session at SW group, all three make close to 5km for the day. Every little helps!

Day 6 - Wembley

For the walks I logged on the watch, we get just over 5km. Overall day of getting about - to and from work - 8km in the bank!

Day 5

It’s another 4km in the bank. But half way through, I knew it was a mistake. Started walking like I was drunk, and that’s a new symptom for me 😕 I should have taken today as a rest day. Still trying to learn, adjust and accept my new limitations. This is one of those battles between my body and my mind. Unfortunately, the body won this fight.

Day 4 - we ((BOUNCE))!

An hours’ class consists of 40 minutes of cardio - jogging, running and sprinting on a mini trampoline. Just over 4km from the cardio section 💪🏼

Day 3

This was a last minute decision to do something, after a day of chilling indoors. It’s not much of an effort, but a dripping tap still fills a bath!

Day 2 in the sun!

8.5km on the Shere and Albury trail. Beautiful day on a beautiful walk with beautiful people!! Thank you to my niece Nicole and her fiancé Armandas for taking the walk with me 🧡

First kms in the bag

MS Awareness Night at ((Bounce)) Bexley

Monday 27th April was a special MS Awareness night at ((Bounce)) Bexley, which had attendees attend in something orange and brought so much energy to the room. 

The night helped further my fundraising to over a £1,000!!

Thank you to ((Bounce)) Bexley for hosting and to my friend Becky for organising 🧡

Here’s a short video of our amazing night:

https://www.facebook.com/share/r/1ca4BpnTSE/?mibextid=wwXIfr

Overwhelmed!

Thank you to those who have so far supported me and donated towards my challenge. We're only half way through April, and the donations are still coming in. 

The generosity of those who have donated are helping the fight of putting a stop to MS, and the research to do that with a cure! 
🎗️🧡🎗️🧡🎗️

Thank you to my Sponsors

£20

Cliff & Cathy

Lucy you are truly amazing & we love you 💖 You've got this! XxX

£10

Anonymous

A kind donation from a member of Belvedere Slimming World group I attend ♥️ xxx

£10

Scott Bolton

£11.33

Jo & Nala X

Go Lucy, you're on target to smash that 100k Love Jo & Nala xx

£11.33

Yvonne Gough

You are amazing. Keep up the good work, we know you can do it!

£20

Char Rickman

Good luck Lucy! You've got this!xx

£10

Charlotte Scott

Well done and keep going!

£11.79

Charlotte L (sw)

Lucy you're and inspiration well done. Best of luck for the 100KM, you've got this 💪🏼

£21.84

Sarah D

Good luck on your walking challenge I know you will achieve the end goal 💕💕

£5

Freddie Carter

£20

Nathan Kenney

So proud of you! You’re smashing it 💥❤️

£50

Adam Thorogood

Lucy, your inspirational and what your doing will be to others as well. All the best with the challenge x

£11.33

Anonymous

I'm so sorry to hear about your diagnosis. Good luck on your fundraising journey.

£20

Angie F

We know you will do your very best, because you are simply the best my beautiful friend. Good luck!x

£50

Andy F

Amazing effort and a great cause. x

£5.99

Eleanor

Lovely meeting you Lucy! You got this 💪 Xx

£32.23

Craig John

Great effort Lucy Good luck

£10

Jessica Smith

Get it girl wahoo. X

£16.56

Hayley Collier

Good luck Lucy, you’ve got this! Amazing cause, well done. See you at Bounce! X

£4

Anonymous

£10

Emma

Lucy, You are going to smash this!! Thank you for sharing your story, you got this Lots of Love

£15

Vicky Jerome

Good luck Lucy. You got this!xx

£32.23

Caroline Schmidt

Good luck with your challenge Lucy - I know you’ll smash it. Lots love x

£106

((bounce)) Bexley

You’ve got this Lucy 🙌 and everyone is behind you!!

£10

Sophie

£10

Benita Haines

£20

Gill Turton

Incredible Work Lucy!

£5.99

Megan

I’m so so proud of you auntie Lucy, you have come so far. We love you lotsssss xx

£20

Christian Broadfoot

£11.33

Nicole H

To my amazing auntie ❤️

£11.33

Arnie Rounding

Good Luck Lucy!

£20

Nick Frith

£11.33

Linda Luciani

You are an inspiration!!

£5

Anonymous

Love you auntie Lucy xx ❤️

£21.84

Charlotte Wisely

Good luck babe you are smashing your journey so far onwards we march 🫶🏻❤️ xxx

£50

Paddy Mccormack

Amazing going, Lucy. All the best with it - Paddy, Alex & Tadhg.

£25.50

Michael Tavarone

£10

Matt Edkins

Go smash it, Luce!

£38.50

Cai

£50

Rob Marsh

£11.33

Tom O'donnell

Good luck Lucy :)

£21.84

Chris Wildey

Good luck Lucy!

£10

Nicola Johnstone

Well Done Lucy, You're openness and determination is inspiring! Wishing you the best of luck

£20

Matt Alex And Lee

We’re all behind you Lucy you’ve got this ❤️

£20

Jane C X

What an inspiration you are, Lucy...I have no doubt that you will complete this challenge with the same determination you have shown this past year...always a smile despite what may be going on inside...go smash it out the park, girl xx

£11.33

Andy Stickley

£20

Chris Hall

Wishing you the very best of luck Lucy! A great challenge and such an important cause!

£10

Jill Roberts

Good luck Lucy.

£10

Chloe Beggie

Well done Lucy! Keep going one step at a time! x

£20

Rich Mcdermott

Best of luck Lucy!

£10

Niall

Go smash it Lucy!!!

£32.23

Anonymous

You anamazing Lady, so loved and respected by all ur football friends

£11.33

David Gregson

Best of luck Lucy!

£11.33

Kerry Spokes

You have this babe! Good luck xx

£10

Lauren Bartholomew

You are going to smash it Lucy, what an amazing cause! Good luck!xx

£11.33

Lilly Brooker

Such an inspirational woman 💗 Good luck Lucy you are definitely going to smash this challenge and i definitely will be cheering and whooping for you along the way 🙌🏼🙌🏼🥰🥰

£21.84

Jeanette &sean

Go and smash it 💪🏻 🙌

£11.33

Natalie

Well done Lucy! A great challenge and a great cause!

£10

Louise Edwards

Good Luck Lucy, you will be fabulous. Just like you. What a great cause. Lots of love Lou xx

£20

John And Hilary Young

Amazing

£30

Gwen Gowers

£21.84

Peter Elsworth

What a person you are! Good luck mate!

£11.33

Rebecca Ryan

Good luck Lucy, what a great cause!

£15

Ardan

I know you'll smash it. Good luck Lucy!

£32.23

Nikky Hart

You are amazing by lovely friend. So very proud of you and all you have been through. Love you lots. Nikky xx 🩷💙💜 (A cause very close to my heart ❤️)

£25

Emma Moore

You are incredible Lucy! An amazing cause and an amazing person❤️

£10

Rachel F

Well done Lucy, happy to do a few laps with you for solidarity (will bring snacks!!). You are brilliant xx

£11.33

Louise Morris

Good luck!

£11.33

Gary Mellish

Good luck, Lucy! Careful if doing laps of the stadium, it's a wind tunnel!

£10

Mason Croker Townsend

Legend!

£11.33

Jas Bhandal

Good luck Lucy! x

£32.23

Madeleine Deasy

Best of luck with the challenge Lucy!

£21.84

Josh Reynolds

Good luck Lucy!

£11.33

Martin Wilson

Good luck with your walk Lucy! You've got this!

£21.84

Jan Allison

You're just simply amazing Lucy👏

£52.12

Pauline Hamshere

Good Luck my Beautiful Girl 🥰 xxx

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